Bad Day

Ok, yesterday was the worst day to date.  After Wednesday was so painful and stressful with having to drive all the way to Chapel Hill and then feeling sick the rest of the day, I had decided that I was done with the Percocet.  I didn’t sleep well the whole night for feeling sick and I know it was from the pain killers.  So I made the decision to just handle it with Alive.

It was going pretty well.  I handled the morning bandage change pretty well and took a nap whne it was over.

When I woke up, it was to more stress dealing with my Daughter and her behavior at school.  Plus I felt that I was so far behind in work that I needed to gt a lot done.   It was just a very emotional day that really didn’t have anything to do with the surgery itself.

Then it was time for the evening change.  I took an Alive at 8 pm and waited for Robin to come to say that Avery was in bed and I could take my shower to take off the bandages and clean the wounds.  Already being emotional, and having had a day full of “why did I do this?” Naturally the bandages would decide to be difficult in coming off.

I sat in the shower for a good half an hour trying to let the water loosen the gauze from the wound.  It just wouldn’t come off.  And it hurt like hell.  Robin even had to get into the shower with me to help.  I felt so stupid sitting on the shower stool crying like an idiot little girl.

Well finally it came off, again hurting like hell.  The first thing I noticed when I was able to open my eyes was the amount of blood on the gauze.  And I thought I must have just done too much that day. I had never had that much blood in the  bandage before.  I thought, hmmmm, I wonder if that is what they mean by bright red blood, and should I call them as the discharge papers say to do if I see it.  Then I realized that there was blood dripping on the shower floor.  And not just a little.  When Robin realized it, we both decided it was time to call the Dr.

She bundled me up in towels and had me lie on the bed and called my brother Bill in to get the discharge papers and call the Dr on duty to find out what to do.  As Bill was transferred from person to person Robin sat beside me to keep pressure on my arm and we kept trying to see where it was bleeding.  Of course leave it my family to make a joke out of a tough situation. Each time Robin removed the gauze, literally, blood would squirt out.  Like an arch through the air.  All I could think about was Dan Ackroyd and the classic SNL Julia Child skit.  Then we were all laughing and saying “I just cut the dickens out of my finger” LOL

We did not get a very good response from the Dr on call and he just kept saying to put pressure on it. Well after 15 minutes of pressure, it was still squirting out. Robin told Bill to hang up on them and call 911.

So the Fire Dept and Paramedics show up about 10 minutes later.  We asked them to keep the sirens off so it didn’t wake up Avery.  The most frustrating part of the whole ordeal is the fact that I had to explain why I these large wounds under my arms.  The Firemen, Paramedics, LPN and RN had no idea what hidradenitis was or why I would need to have all that skin removed.  I had to go through the whole thing so many times.  Or maybe it was there way of keeping my mind off of everything.  Who knows.

Robin followed the ambulance to the hospital up the road. Not too far away.  After explaining the surgery a couple more times, I finally saw the ER Dr who finally at least knew what I was talking about.  Turns out it was most likely a spot that was cauterized during the surgery, that got loosened and came off during the bandage change.  He was able to inject lidocaine and epinephrine to numb and dilate the capillary that was hemorrhaging. Then cauterized it again.

So it turned out not to be a huge problem, but scary.  I have never seen so much blood.  And to see if coming out of me and literally dripping down my arm and side….that is a bit disconcerting.

They waited a while to make sure it didn’t start bleeding again and then sent us home.  Robin and Bill got me set up in my room again, but sleep did not come.  I was so afraid to move my arm for fear that it would start bleeding again.  I am still worried about taking the pain killer.  I just hate the way them make me feel.  The ER Dr did give me a new prescription for something not so strong.

All in all, the worst day so far of the experience.  Definitely second guessing the decision to do this.  of course, nothing I can do about it now.

And to top it all off, Armand was in LA yesterday.  He was already scheduled to come home on the red eye, but I knew he would be worried and feeling helpless.  But I have to say I have the MOST AMAZING support system.

Thank you Danielle for coming in at the last minute.  I just didn’t know if I would be admitted and thank you for willing to come in and stay the night to take care of Avery if Robin and I didn’t get back last night.  Bill had to clean the bloody mess of a bathroom and bedroom after we left in the ambulance.  And had to deal with calling Armand.  Bryan drove all over looking for an open McDonalds so I could have a cheeseburger when I got home. (I was shaking from the epinephrine and getting over the shock and needed something to eat).  Robin was amazing and didn’t pass out once with all the spurting blood.  LOL.

The next obstacle is the bandage change today.  I am so no looking forward to it.  I know it will be fine, but I will still be a bundle of nerves when it comes time.

Not the best entry to date, but it was my goal to show the good the bad and the ugly of this disease and surgery so the next person has all the info they can have to help them make their decision.

Gonna nap now.  And get ready for the next change.

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